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Listservs and Parent Groups

A listserv for parents of children who are blind or visually impaired moderated by an adult with ROP.  To subscribe send a blank email to the following:
http://groups.yahoo.com/group/ROP-support

A blog on retinopathy of prematurity
http://www.inspire.com/groups/preemie/discussion/retinopathy-of-prematurity-1/

A generalized listserv for parents of children who are blind or visually impaired
http://groups.yahoo.com/group/BVI-Parents

A listserv for parents of children with familial exudative vitreoretinopathy
http://health.groups.yahoo.com/group/FEVR

A Website created by a parent with excellent resources for parents of children with familial exudative vitreoretinopathy.
http://www.fevr.net/

A listserv for families of children with Norrie Disease
http://www.norriedisease.org/

National Federation of the Blind - Parent of Blind Children (NFB-POBC)
http://www.nfb.org

NFB is an organization composed of blind adults. Their parent division is NFB-POBC. This organization has been extremely active in advocacy for the rights of adults and children who are blind. They can be reached for further information by email nfb@access.digex.net.

A wealth of information with links to the Wonder Baby Blog.  Sign up for email updates http://www.wonderbaby.org.