Listservs and Parent Groups
A listserv for parents of children who are blind or visually impaired moderated by an adult with ROP. To subscribe send a blank email to the following:
A blog on retinopathy of prematurity
A generalized listserv for parents of children who are blind or visually impaired
A listserv for parents of children with familial exudative vitreoretinopathy
A Website created by a parent with excellent resources for parents of children with familial exudative vitreoretinopathy.
A listserv for families of children with Norrie Disease
National Federation of the Blind - Parent of Blind Children (NFB-POBC)
NFB is an organization composed of blind adults. Their parent division is NFB-POBC. This organization has been extremely active in advocacy for the rights of adults and children who are blind. They can be reached for further information by email firstname.lastname@example.org.
A wealth of information with links to the Wonder Baby Blog. Sign up for email updates http://www.wonderbaby.org.