The “experts” never say anything about how your role as a parent changes when your child becomes a young adult. Out of all the books and articles I have read about parenting there was nothing to prepare me for my young adult child.
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Calvin thinks it is “cool” and “fun” to look ahead to new ways of managing his life. He is very open about his disability and willing to share his story. He would like others with disabilities to not think they will not succeed because of their situations but to have a belief that they will prevail.
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When Chuck’s third child, Collin, sat too close to the TV, he and his wife thought that was merely unusual. The day after Christmas, when Collin was around 5 years old, the family learned that he had congenital X-Linked retinoschisis, splitting of the retinal layers, and there was no treatment and no cure. It was predicted that Collin would eventually be blind.
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